country singer announced her birth and death on both Facebook and Twitter, and fans have offered kind words of support during this difficult time.
Rumer Rain Rogers was diagnosed with nonketotic
hyperglycinemia (NKH), a genetic disease with no cure. NKH is extremely rare,
affecting 1 in 66,000 newborns in the U.S. Symptoms include muscle lethargy,
breathing and feeding difficulties, all of which Rumer was exhibiting.
"Chelsea and I always thought that we were two peas in a
pod," Rogers told People.com. "Turns out literally we are, genetically; we have
the same exact recessed gene. The odds are astronomical."
Despite the loss of Rumer, Rogers and his wife are
determined to continue expanding their family. They want another sibling for
their two daughters—Isabel, 5, and River, 21 months.
"We'll just have to do in vitro fertilization," Rogers
told People.com. "There will need to be genetic screening and genetic
testing done before the implantation of the fertilized egg. It's given us a lot
of joy and hope knowing that it is possible for us to do this; it's just going
to have to be a different route than the traditional one."
Rogers is working to help other families who are dealing
with a sick baby. He has teamed up with Seton Medical Center Austin. They are
jointly creating a fund for nesting suites, providing a place of comfort for
families who have babies in neonatal intensive care units (NICU).
In addition to raising funds for NICU, the country singer is
staying focused on the positive outcomes of this tragedy.
"I'm just so happy that there are men and women so smart and
passionate to be able to identify these things," Rogers told People.com. "Now, because my daughter died and we now know we carry this gene, no one else in our
family will have to have that happen to them and science is to thank for that."