Parents have been known to go to great lengths to ensure the best life possible for their child, and that’s exactly what Mark and
Evelyn Moore, parents of 13-month-old Evelyn, did.
When sweet little Evelyn was
just four months old, a routine doctors appointment led to a bunch of tests and
an eventual diagnosis of cancer—Stage 4 neuroblastoma, to be exact.
There were tumors on Evelyn’s
spine and lungs and the infant eventually underwent eight rounds of
chemotherapy. One of the tumors crushed her spine, leading her to become
paralyzed from the arms down.
So while other babies her age
were learning to scoot, crawl and walk, Everly and her family were fighting for
her life. Doctors told the family that while she wouldn’t ever be able to walk,
she would eventually be able to army crawl and use a wheelchair.
To help Evelyn start moving
around, and to give her as "normal" a life as possible, her mom started looking around for a toddler-appropriate wheelchair. But
because of Evelyn’s diminutive stature—she’s 18 pounds—it was especially
difficult to find anything suitable. Then one day, Kimberly saw an innovative
wheelchair on Pinterest that utilized a bumbo, bicycle tires and a cutting board.
She tells Today, “I brought it
to my husband and said, ‘Can we do this too?’ And so we went to the parts
store.” As an event planner and tire technician, the couple had no experience building things from scratch, but a parent's love can move mountains, so two days and $100 later, seven-month-old Evelyn had a custom-made working wheelchair
that she could zoom around in.
And since Evelyn has gotten used to her new ride, she's hit the road—spirits blazing.
fearless. She’ll go in her wheelchair on the top of a hill, let go and put her
hands in the air, then catch herself when she gets to the bottom. She’s a good
little baby. She’s been through a lot and she’s just trying to get back to what
normal looks like," shares Kimberly.
Evelyn is such a daredevil
that her parents had to install a little speed bump inside their house to slow her
The toddler's cancer has been in remission the past couple months, so now the family is looking to relearn what their new normal is. Kimberly admits that spending eight months in the hospital has led to depression and anxiety, but that she's looking forward to seeing what the other side is like, and who Evelyn will become.
“Her true person comes out
when she’s in that chair. She [now] has the same interactions as other children
wouldl, being at eye-level add exploring the world on the ground. That’s what
she is able to do in moving around. It’s pretty exciting.”